It’s an Endo Party, and all of my organs are invited

Endometriosis is a chronic disease. So, this puppy is sticking it out until the end (my death). You can read the scientific definition of it here, or read my quick one below:

Endometrium is what lines the inside of the uterus. Menstruation is when this lining comes out (your period). However in women with endo, the lining says “Eff this, I’m staying up in here.” And that’s exactly what it does. Except it moves around a bit, setting up shop in more comfortable places like a squishy ovary or the bottom part of your uterus that never gets any sun. Once those sons of bitches have established residency, you can’t evict them. So then every time a woman menstruates, the little buggers secrete blood as well, building on top of each other and spreading around like super glue, fusing all of your organs together into one giant blob and causing an unbelievable amount of pain, as well as infertility. You do not want an invitation to this party.

There is no cure, and no one knows what causes it.

This is the first time in 32 years that anyone has mentioned this disease to me. Then I started researching the symptoms. I have all of them, by the way:

  • Painful cramps, with pain that radiates down the leg to mid thigh
  • Painful intercourse
  • Painful bowel movements
  • Chronic pelvic pain
  • Rectal pain
  • Stabbing pain in the intestines
  • Chronic fatigue
  • Bloating
  • Nausea
  • Alternating constipation and diarrhea
  • Anxiety
  • Depression
  • Digestion problems
  • Insomnia

As long as I can remember, I’ve always had these issues, so for me they were “normal” and didn’t need mentioning. I know it’s sad, but it just never occurred to me that I should feel any other way.

Finally equipped with a possible diagnosis to explore, Dr. Roberson puts me on birth control and 50mg of progesterone, hoping the extra hormones will eliminate my pain. All of our fingers are crossed.

4 weeks later I’m back in her office, with no change in symptoms. It was time to make an appointment with Dr. Mangal, the god of endometriosis.

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2 Responses to It’s an Endo Party, and all of my organs are invited

  1. Kelsie Mc Sherry says:

    I so appreciate your definition and list of symptoms…extremely helpful!
    This is a tough one to acknowledge and accept. Thank you for your vulnerability!!! ❤

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